Adaptação cultural, validade e fiabilidade da escala pessoal de resultados-crianças e jovens

Main Article Content

Cristina Simões
https://orcid.org/0000-0002-5136-255X
Célia Ribeiro
https://orcid.org/0000-0002-1000-6890
Inês Cabral
Paulo Almeida Pereira
https://orcid.org/0000-0002-3941-8274

Resumo

A presente investigação apresenta os resultados de um estudo piloto que tem como objetivos efetuar a adaptação cultural da Escala Pessoal de Resultados-Crianças e Jovens (EPR-CJ), bem como examinar a sua validade e fiabilidade. Esta escala possibilita avaliar a Qualidade de Vida (QV) das crianças e jovens com Dificuldade Intelectual (DI). Das diferentes amostras englobadas nesta investigação, salienta-se que a amostra final incluiu 54 crianças e jovens com DI e 54 profissionais de educação. O estudo iniciou com a aplicação das diretrizes internacionais relativas à adaptação cultural. Os resultados do Índice de Validade de Conteúdo (IVC) dos itens, do acordo universal do IVC do instrumento, da média do IVC da escala e dos valores do Kappa de Cohen suportaram a validade de conteúdo, tendo as correlações de Pearson reforçado a validade de constructo da EPR-CJ. Os valores do teste-reteste, da consistência interna e do acordo entre observadores sustentaram a fiabilidade do instrumento. Os diferentes coeficientes psicométricos ilustraram que esta escala pode ser bastante útil para a avaliação da QV das crianças e jovens com DI, sendo a EPR-CJ crucial para desenhar os programas de intervenção destes alunos em contextos inclusivos de aprendizagem.

Palavras-chave: Dificuldade intelectual, Qualidade de vida, Validade, Fiabilidade

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Referências

American Psychiatric Association (APA). (2014). Diagnostic and statistical manual of mental disorders (5th ed.). Washington, DC: American Psychiatric Association.

Andresen, E. (2000). Criteria for assessing the tools of disability outcomes research. Archives of Physical Medicine and Rehabilitation, 81(2), S15–S20. https://doi.org/10.1053/apmr.2000.20619

Araújo, J., Dourado, M., & Ferreira, P. (2015). Instrumentos de medição da qualidade de vida em idade pediátrica em cuidados paliativos. Acta Médica Portuguesa, 28, 501–512. https://doi.org/10.20344/amp.5395

Brown, I. (2017). Quality of life: Challenges to research, practice and policy. Journal of Policy and Practice in Intellectual Disabilities, 14(1), 7–14. https://doi.org/10.1111/jppi.12185

Buntinx, W., & Schalock, R. (2010). Models of disability, quality of life, and individualized supports: Implications for professional practice in intellectual disability. Journal of Policy and Practice in Intellectual Disabilities, 7(4), 283–294. https://doi.org/10.1111/j.1741-1130.2010.00278.x

Claes, C., Mostert, R., Moonen, L., Van Loon, J., & Schalock, R. (2015). Personal Outcomes Scale for Children and Adolescents: Instrument for the assessment of individual quality of life of children and adolescents between the ages of 6-18. Ghent, Belgium: Stichting Arduin.

Claes, C., Van Hove, G., Vandevelde, S., Van Loon, J., & Schalock, R. (2010a). Person-centered planning: An analysis of its published literature and effectiveness. Intellectual and Developmental Disabilities, 48(6), 432–453. https://doi.org/10.1352/1934-9556-48.6.432

Claes, C., Van Hove, G., Van Loon, J., Vandevelde, S., & Schalock, R. (2010b). Quality of life measurement in the field of intellectual disabilities: Eight principles for assessing quality of life-related personal outcomes. Social Indicators Research, 98(1), 61–72. https://doi.org/10.1007/s11205-009-9517-7

DeVon, H., Block, M., Moyle-Wright, P., Ernst, D., Hayden, S., Lazzara D., ... Kostas-Polston, E. (2007). A psychometric toolbox for testing validity and reliability. Journal of Nursing Scholarship, 39(2), 155–164. https://doi.org/10.1111/j.1547-5069.2007.00161.x

Gaspar, T., & Matos, M. (2008). Qualidade de vida em crianças e adolescentes: Versão portuguesa dos instrumentos Kidscreen-52. Cruz Quebrada, Portugal: Aventura Social e Saúde.

Ghotra, S., McIsaac, J., Kirk, S., & Kuhle, S. (2016). Validation of the ‘Quality of Life in School’ instrument in Canadian elementary school students. PeerJ, 4, e1567. https://doi.org/10.7287/peerj.preprints.1429v1

Gómez, L., Verdugo, M., Arias, B., & Arias, V. (2011). A comparison of alternative models of individual quality of life for social service recipients. Social Indicators Research, 101(1), 109–126. https://doi.org/10.1007/s11205-010-9639-y

Hartley, S., & MacLean, W. (2006). A review of the reliability and validity of Likert-type scales for people with intellectual disability. Journal of Intellectual Disability Research, 50(11), 813–827. https://doi.org/10.1111/j.1365-2788.2006.00844.x

Huang, C., Wang, T., Tang, F., Chen, I., & Yu, S. (2017). Development and validation of a Quality of Life Scalefor elementary school students. International Journal of Clinical and Health Psychology, 17(2), 180–19. https://doi.org/10.1016/j.ijchp.2017.01.001

Karr, V. (2011). A life of quality: Informing the UN Convention on the Rights of Persons with Disabilities. Journal of Disability Policy Studies, 22(2), 66–82. https://doi.org/10.1177/1044207310392785

Li, C., Tsoi, E., Zhang, A., Chen, S., & Wang, C. (2013). Psychometric properties of self-reported quality of life measures for people with intellectual disabilities: A systematic review. Journal of Developmental and Physical Disabilities, 25(2), 253–270. https://doi.org/10.1007/s10882-012-9297-x

Luckasson, R., Borthwick-Duffy, S., Buntinx, W., Coulter, D., Craig, E., Reeve, A., … Tassé, M. (2002). Mental retardation: Definition, classification, and systems of supports (10th ed.). Washington, DC: American Association on Mental Retardation.

Lombardi, M., Croce, L., Claes, C., Vandevelde, S., & Schalock, R. (2016). Factors predicting quality of life for people with intellectual disability: Results from the ANFFAS study in Italy. Journal of Intellectual & Developmental Disability, 41(4), 338–347. https://doi.org/10.3109/13668250.2016.1223281

Morato, P., & Santos, S. (2007). Dificuldades intelectuais e desenvolvimentais: A mudança de paradigma na conceção da deficiência mental. Revista de Educação Especial e Reabilitação, 14(1), 51–55.

Nações Unidas. (2007). Convenção sobre os direitos das pessoas com deficiência. Lisboa, Portugal: Instituto Nacional para a Reabilitação. Disponível em http://www.inr.pt/content/1/50/organizacao-das-nacoes-unidas, consultado em 07/07/2018.

Nilholm, C., & K., Göransson (2017). “What is meant by inclusion? An analysis of European and North American journal articles with high impact.” European Journal of Special Needs Education, 32(3), 437–451. https://doi.org/10.1080/08856257.2017.1295638.

Oliveira, O., Ribeiro, C., Simões, C., & Pereira, P. (2018). Quality of life of children and adolescents with visual impairment. British Journal of Visual Impairment, 36(1), 42–56. https://doi.org/10.1177/0264619617737123

Pestana, M., & Gageiro, J. (2005). Análise de dados para ciências sociais: A complementaridade do SPSS. Lisboa, Portugal: Edições Sílabo.

Polit, D., & Beck, C. (2006). The content validity index: Are you sure you know what’s being reported? Critique and recommendations. Research in Nursing & Health, 29(5), 489–497. https://doi.org/10.1002/nur.20147

Rodrigues, D. (2003). Educação inclusiva: As boas e as más notícias. In D. Rodrigues (Org.), Perspectivas sobre a inclusão da educação à sociedade (pp. 89–101). Porto: Porto Editora.

Rodrigues, D., & Nogueira, J. (2010). Educação especial e inclusiva em Portugal: Factos e opções. Revista Educación Inclusiva, 3(1), 97–109.

Schalock, R., Brown, I., Brown, R., Cummins, R., Felce, D., Matikka, … Parmenter, T. (2002). Conceptualization, measurement and application of quality of life for persons with intellectual disabilities: Report of an international panel of experts. Mental Retardation, 40(6), 457–470. https://doi.org/10.1352/0047-6765(2002)040<0457:CMAAOQ>2.0.CO;2

Schalock, R., Buntinx, W., Borthwick-Duffy, S., Luckasson, R., Snell, M., Tassé, M., & Wehmeyer, M. (2007). User’s guide-mental retardation: Definition, classification and systems of supports (10th ed.). Washington, DC: American Association on Intellectual Disability.

Schalock, R., Gardner, J., & Bradley, V. (2007). Quality of life for people with intellectual and other developmental disabilities: Applications across individuals, organizations, communities, and systems. Washington, DC: American Association on Intellectual Disability.

Schalock, R., Luckasson, R., Tassé, M., & Verdugo, M. (2018). A holistic theoretical approach to intellectual disability: Going beyond the four current perspectives. Intellectual and Developmental Disabilities, 56(2), 79–89. https://doi.org/10.1352/1934-9556-56.2.79

Schalock, R., & Verdugo, M. (2002). Handbook on quality of life for human service practitioners. Washington, DC: American Association on Mental Retardation.

Schalock, R., Verdugo, M., & Gómez, L. (2011). Evidence-based practices in the field of intellectual and developmental disabilities: An international consensus approach. Evaluation and Program Planning, 34(3), 273–282. https://doi.org/10.1016/j.evalprogplan.2010.10.004

Schalock, R., Verdugo, M., Gómez, L., & Reinders, H. (2016). Moving us toward a theory of individual quality of life. American Journal on Intellectual and Developmental Disabilities, 121(1), 1-12. https://doi.org/10.1352/1944-7558-121.1.1

Simões, C., & Santos, S. (2014). Cross-cultural adaptation, validity and reliability of the Escala Pessoal de Resultados. Social Indicators Research, 119(2), 1065–1077. https://doi.org/10.1007/s11205-013-0515-4

Simões, C., & Santos, S. (2017). The impact of personal and environmental characteristics on quality of life of people with intellectual disability. Applied Research in Quality of Life, 12(2), 389–408. https://doi.org/10.1007/s11482-016-9466-7

Simões, C., & Santos, S. (2018). Qualidade de vida, comportamento adaptativo e apoios: Compreender a relação entre constructos na dificuldade intelectual e desenvolvimental. Cruz Quebrada: Edições Faculdade de Motricidade Humana.

Simões, C., Santos, S., & Biscaia, R. (2016). Validation of the Portuguese version of the Personal Outcomes Scale. International Journal of Clinical and Health Psychology, 16(2), 186–200. https://doi.org/10.1016/j.ijchp.2015.11.002

Simões, C., Santos, S., Biscaia, R., & Thompson, J. (2016). Understanding the relationship between quality of life, adaptive behavior and support needs. Journal of Developmental and Physical Disabilities, 28, 849–870. https://doi.org/10.1007/s10882-016-9514-0

Simões, C., Santos, S., & Claes, C. (2015a). Quality of life assessment in intellectual disabilities: The Escala Pessoal de Resultados versus the World Health Quality of Life-BREF. Research in Developmental Disabilities, 37(2), 171–181. https://doi.org/10.1016/j.ridd.2014.11.010

Simões, C., Santos, S., & Claes, C. (2015b). The Portuguese version of Personal Outcomes Scale: A psychometric validity and reliability study. Intellectual and Developmental Disabilities, 53(2), 129–142. https://doi.org/10.1352/1934-9556-53.2.129

Simões, C., Santos, S., Claes, C., Van Loon, J., & Schalock, R. (2017). Avaliação da qualidade de vida na dificuldade intelectual e desenvolvimental: Manual de administração da Escala Pessoal de Resultados. Coimbra: FORMEM.

Verdugo, M., Navas, P., Gómez, L., & Schalock, R. (2012). The concept of quality of life and its role in enhancing human rights in the field of intellectual disability. Journal of Intellectual Disability Research, 56(11), 1036–1045. https://doi.org/10.1111/j.1365-2788.2012.01585.x

Watkins, M., & Pacheco, M. (2000). Interobserver agreement in behavioral research: Importance and calculation. Journal of Behavioral Education, 10(4), 205–212. https://doi.org/10.1023/A:1012295615144

World Medical Association. (2008). Declaration of Helsinki: Ethical principles for medical research involving human subjects. Disponível em http://www.bioetica.ufrgs.br/helsin7.pdf, consultado em 26/04/2012.

Wynd, C., Schmidt, B., & Schaefer, M. (2003). Two quantitative approaches for estimating content validity. Western Journal of Nursing Research, 25(5), 508–518. https://doi.org/10.1177/0193945903252998

Yaghmaie, F. (2003). Content validity and its estimation. Journal of Medical Education Spring, 3(1), 25–27. https://doi.org/10.22037/jme.v3i1.870